Wednesday, November 30, 2011

My Epic Journey Home - Part Four

So there I am trapped in a hotel room with a lunatic. I no longer feel safe with him. I think he is a danger to himself too. It was at this moment of stale mate that Fishy texted me that she was up and wanted coffee. What about me? It was 6:30 am. My instant response was, "what room are you in?". As soon as she responded I grabbed my key card and fled the room. I showed up at Fishy's door in my pajamas and probably looking a little haggard. Though we had never met before she welcomed me into her room, had me sit, and listened as I poured out what had been happening to me the last four days. She reassured me that I was not over reacting, that his behaviour was unacceptable, and that she was pretty sure she had room in her van for me. I was shocked at how readily she welcomed me into her life and vehicle. She didn't know me at all. Being disabled herself also meant that she had her own special needs to worry about. And here she was taking on me and my problems. My hero! In that moment I knew it would be alright and I could relax finally.

My mind made up, I returned to the room, told him we were separating, that since he didn't feel safe with me anymore, that I would go my own way. I followed him down to the car, grabbing a bellhop along the way. I explained I was kicking this man out of my room and asked for his help getting my stuff out of his car. The bellhop was happy to help. The only thing I couldn't manage was my bike. It was lashed too tightly down and Fishy had nowhere for a bike. My former driver promised to get it to Burning Man for me and I could come by his camp later in the week and get it. I looked at him in disbelief but at this point I just wanted him gone. If I lost the bike I figured it was worth it. Most probably though he would make it to Burning Man, because he was a working photographer for them. He had an actual job to do at the burn. I told him thanks, left him with my food and water as I knew he didn't have money to get his own, and implored him to get some rest before he ended up hurting himself or someone else.

I met back up with Fishy and we got breakfast. I couldn't believe this virtual stranger had just come to my rescue. I felt like I had no adequate way to even express my thanks to her. She had literally kept me calm, kept me from getting stranded in Reno, and was going to help me get supplies and drive me to BRC. She couldn't know this, but I am quite introverted and prone to panic attacks. I don't know what would have happened to me without her. After loading up on supplies and loading up her van in tetris like fashion, we got under way. Fishy has the same dry cynical humour as I do and our ride to the gate and our subsequent wait at said gate turned out to be one of my best. I hope she enjoyed herself as much as I did. I laughed and barely noticed how long we waited. We entered the city at night fall.

Fishy was my hero that day and everyone else on eplaya as well. If it hadn't been for this forum and the wonderful people I have met I would not have even known Fishy. I also knew in the back of my head that I had this forum at my fingertips to be able to reach the burner community and ask for help if anything else crazy happened. Thank you one and all. You made my burn this year.

Stay tuned for Part Five in which fun is had, things burn, people are met, and I figure out a way to get out of BRC at the end of the week.

Tuesday, November 22, 2011

My Epic Journey Home - Part Three

Let's take a moment to recap so far.

In five days time I have:
-gathered the gas/travel money I raised through the kindness of my family
-packed all my items which are extensive because of my disabilities in one large duffel and a plastic bucket
-tracked down a ride/driver from Virginia to BRC
-waited while he took 7 hours to pack a car with almost nothing useful for Burning Man
-traveled with said driver over halfway across the US listened to him ramble about the most random and crazy subjects non-stop in the car waited while he took pit stops and literally disappeared for an hour or so into a truck stop or Walmart
-hid my annoyance with his disappearing acts and erratic behavior
-tamped down my worry over his drug abuse, non-sleep, and non-eating
-watched a storm approach on the horizon as our car broke down at sunset in nowhere Kansas
-listened to my driver verbally abuse his mother on the phone for 3 hours
-paid for his car to be fixed
-listened as he accused me of saying things and then start arguments with me over them
-talked him out of driving off the road near the salt pans to test out his "performance vehicle"
-done all this on no pain pills as they make me terribly car sick even though my pain level is prolly a 9 at this point


We began our last leg of the journey to Reno. We are sleep deprived. We are dirty. We are irritable and none too fond of the other at this point. I am faking sleep in the car so he won't talk to me. He is getting pissed at me sleeping cause he needs me to keep him amused and awake. For my own safety I humour him. We go through the salt pans in Utah where I have a heart stoping moment as he suggests we off road in his sports car. As if we aren't already spending too much on gas. Oh did I say we? I meant I have spent too much on gas. He has paid nothing up to this point because he won't have any money til he gets paid September 1st. And the bad oil and subsequent break down has cost us an extra $300 more than I originally calculated. He said as a joke when we began the trip that we would end it hating each other. Too late. We aren't halfway through and I already hate him. I just keep thinking Reno will fix this. We will calm down, get some rest, and be on the last golden stretch to the burn.

Miraculously we make it and check into the Sands Resort and Casino on Sunday evening. I'm so excited! The weight on my shoulders lifts and I just feel exhilerated and ready to get to Burning Man tomorrow. I shower and order tons of room service. I check in with my eplaya friend Fishy (the Cryptofishist) as I know she is staying at the Sands as well. She lets me know she is broken down on the side of the road. I worriedly text her back and demand to know if she is alright and if someone is with her. I try to imagine how we will go get her if she needs it. Our car is tiny and filled with pointless crap. She texts yes she is ok and with someone. I calm down, stuff my face, and begin to tally up the travel receipts and make a shopping list. Fishy finally arrives which makes me happy but tells me she is tired and I confirm I am as well. We leave it open ended whether we will meet in the morning.

During all this time my driver is wandering in and out of the room, to go smoke downstairs, but then he'd get lost and turned around in the casino. Every time he returned he appeared more agitated. He ignored the shower and lovely bed. He ignored the food. He set up his computer and worked up an ire over the fact that he couldn't pick up any wifi to get internet connectivity. He noticed me tallying up receipts and seemed to get angry at me over this. He implied I was an idiot and couldn't tally them properly. He took them away from me at this point and started to shuffle them around on the desk. He started to panic about having enough money to get home after the burn. He berated me over and over about the money and what he would have to do to raise more for us. I stared at him in shock for awhile over his outburst and finally interrupted him to let him know we were fine for money and I would of course be able to cover my share of gas on the way home. He then began screaming at me "Then why would you tell me you don't have enough money and let me get all worked up and worried!?!"

I am really tired and confused at this point. I tell him I never said any such thing and ask him to stop screaming at me. I am lying in bed at this point trying to get some sleep. He proceeds to stand over me and call me crazy and yell at me about my lack of intelligence and just generally get verbally abusive. I begin to cry which seems to make him even angrier. He paces, he gesticulates, he screams. I cried and huddled in bed. This continued for about 4 hours. You may wonder why I let this go on. I am not totally sure myself but I can say that I was in shock. In that moment he very much reminded me of an ex-boyfriend. A man who spent two years knocking down my self esteem and verbally abusing me. It took me a long time to get away from him and get my head on straight after that experience. But in that hotel room I fell right back into my victim mentality and let him terrorize me for four hours.

I had been asking the entire time for him to calm down and stop yelling at me. I finally stopped being upset/shocked and got angry. I snapped. I sat up in bed and yelled back at him once and for all to stop screaming at me and to sit the fuck down and maybe even get some sleep. I did scream, but I didn't get out of bed, I didn't make any movements, and I did not threaten him with anything. I am a disabled female crying in a bed.

You would have thought I had just physically assaulted him or pulled a gun on him. He proceeded to shrink back, huddle in on himself, and accuse me of threatening him. He said I was mentally deranged, that he feared for my safety, that maybe he should call the authorities and have a doctor take custody of me. He started to scream at me again, how could I do this to him, how could I keep him from sleeping after he'd been awake 4 days, how could I threaten him. I asked him what the hell he was talking about. How was I keeping him from sleep, how was I a "threat"? He screamed back at me that I was obviously a violent individual, that he feared for his safety, and how could he sleep when he knew I would take the opportunity to stab and kill him? I proceeded to leap out of bed, pick up the phone, and tell him I was calling the cops if he didn't shut up and stop screaming at me. He then went and huddled in the corner. I returned to bed with no idea of what to do. I knew I needed him gone because if he thought I was a threat to him, he would eventually snap and become a threat to me.

Thursday, November 17, 2011

My Epic Journey Home - Part Two

We began our trip on Thursday, August 25, at 2:35 am. We needed to reach Reno by Sunday. I had driven to his home the previous afternoon and we had spent all night packing. I use this term lightly because you see, though I was packed neatly, and all my items obsessively labeled, he literally just threw a bunch of stuff in the car on top of mine. He packed barely any clothes and no shelter, but he brought a full computer, extra screen and all his photography equipment. I understood that he was working as a photographer for the burn but his apparent unpreparedness worried me. He seemed very erratic and easily distracted. He told me he had PTSD and ADD. He had a prescription for Adderall. But he also seemed very sweet and intelligent. Who am I to judge another's issues? I am bipolar after all. It tends to make me very tolerant of other people's oddities. So we began our trip.

It began well enough but went down hill quickly. We drove and drove until nightfall again and somewhere in Missouri I decided we needed a good night's sleep, so I paid for a motel. I woke up the next morning to find him still awake having not slept at all. We got on the road and I continued to watch in concern as he also wasn't eating. I began to be a little uneasy as he kept popping more and more of his Adderall. On no sleep and no food. In Kansas right before we hit Nebraska the car broke down. I wasn't alarmed because he rationally figured out that the oil change he got before we left must have been done incorrectly. You see he has a turbo and the car was acting like it had regular oil in it instead of synthetic. This causes things to gunk up and over heat. When the car cooled we got back on the road and headed to our hotel we already had booked in Nebraska. We knew we would have to get the car looked at the next day. I thought the issue was decided on. I went to sleep.

I woke up the next morning to find him still awake after obsessively spending the entire night researching his engine online, calling his mother to yell at her about the oil change (she's the one who took the car to the mechanic for him), posting inflammatory and histrionic statements on facebook, and then finally getting a call from his father and yelling at him too for "taking his mother's side". I managed to get him calmed down and in the car but it was 1:00 pm at this point. I was getting seriously annoyed but kept it well hidden so as not to antagonize him further. We took the car to jiffy lube where I paid for an engine flush and fresh synthetic oil. The car fixed, I now turned my attention on my driver. He was unkempt, wild-eyed, and rambling at this point. He continued to pop Adderall like vitamins. Again on no sleep and no food. He was convinced we could push through and hit Reno by Sunday evening. After a heated argument in a parking lot we got on the road. He kept occasionally accusing me of saying things I hadn't really said, starting irritating yet small arguments. I humored him to shut him up. I just wanted to get to Reno. It became a mantra in my head. Reno. Reno. Reno. I thought he was just obsessing about this as well and would calm down and get some rest once we hit Reno. I had never wanted to see a city more.

Tuesday, November 8, 2011

My Epic Journey Home - Part One

(To be told in increments, it's a long story. My apologies for any typos.)

I want to share the story of my journey to Burning Man this year. But for me the journey started all the way back at the new year. So many things shaped the eventual way I got to and participated in the burn this year. So many people helped me along the way. I want to tell this story as a thank you to all those people. And as a way for me to process all the many things I experienced along the way as well. If you choose to take the time out of your day and read what I share then I thank you as well.

My year began with a scary diagnosis. 6 hernias in my spine (3 lower lumbar and 3 cervical) as well as numerous other problems. I think I handled it well. I cried for 5 minutes then went back to work. My life began to change in scary ways. On the one hand was the happy news that I finally knew what was wrong with me and that my doctors now knew as well and were taking me seriously all of a sudden. It was nice to not be dismissed anymore. On the other hand, I had to reduce my hours at work and begin physical therapy. I had to begin using a cane and sometimes even a walker. I got a handicap placard for my car. I had to ask for help sometimes even to get dressed or shower. The change that was hardest for me was learning to ask for and accept the help that I so obviously needed. After 6 months of PT and little improvement I had to face the fact that I couldn't work anymore. At least not as I was. I began to train my replacement and then finally in June left on disability leave. It was painful and a relief all at the same time to leave that daily struggle behind. I had spent the last 4 years of my life partly defining myself as an executive assistant though. What was I now?

I spent the first few days of my new work free schedule letting depression and anxiety rule my thoughts. I had been planning since missing Burning Man 2010 (due to the as yet undiagnosed spinal injury and its side effects) to attend in 2011. That hope was beginning to die. I continued seeing my doctors and was referred to a neurosurgeon. The surgeon recommended a triple cervical fusion of the vertebrae in my neck. In July I was in yet another car accident and my surgery had to be postponed until we could get the new swelling in my neck down and take yet another MRI.

At this point I decided I was going to Burning Man even if it killed me. I needed something happy to plan for. You see, I have a deathly fear of hospitals and medical procedures. It is a phobia that grew out of childhood experience. At the age of 11 I spent 2 years watching my best friend wither away in a cancer ward. She survived but the trauma never left me. I knew that without a sufficiently exciting distraction that I would talk my self out of the surgery that I so desperately needed. So you see Burning Man became an important step in my eventual rehabilitation.

I bought my ticket and began the long process of figuring out how to get there. I had little money. I had no credit card. I can't drive for very long. Hell, I can't even sit up for very long. I researched flights. I posted ride shares. I talked
to friends and strangers alike about going with me. Each day that passed was filled with thoughts of the burn and all the details that go into such a plan. I was happy. One day might just be writing a list. Another day, a trip to Goodwill. I sold items I no longer needed on eBay. I did small jobs for my family, like babysit my nephew, to raise money.

I was constantly contacted by interested people for ride shares who would then not respond once I got back to them. My funds were still too low. My disability payments were coming in sporadically and had to be first used to make my health insurance payments. I was frustrated and really worried that maybe I wouldn't be able to go to the burn after all. I was to my horror becoming quite maudlin and self-pitying. I determined to suck it up and just sell my ticket and not go.

Literally right after I made this decision everything changed. My brother and sister-in-law came to me and said that they understood how important the burn was to me this year and knew I needed money. They gave me $600. My parents came back from a trip during which I watched their house and dogs. I did this because they are family and I am happy to help. My father proceeded to pay me $400. I literally fell to the floor and started crying when he gave me the money. All my items sold on eBay and I netted another $160. I now had plenty of money, but no way to get me, all my gear, my clothes, and my bike to the burn. I started to reach out to other people offering rides. I was desperate to go and just needed a ride. I managed to get in contact with one of the Washington DC regional heads and he hooked me up with someone whose ride along had just pulled out on them. I needed a driver and he needed gas money. It also turned out I knew this person as an acquaintance. He was friends with many of my friends and I felt very comfortable after a few long talks about driving across the country with him. Everything seemed to finally be working out.